Yesterday, Tony and I met with the Oncologist that has been treating Tony at UCLA for the past 5 months. It was our "exit interview", and it was a time for questions to be asked and answered. The pic-line was removed, so Tony no longer has anything invading his body. Tony said "I feel free."
A Petscan will be done in 2 weeks, and will be used as a baseline for future scans.
Tony will need to have a Petscan done every 3 months for the next 2 years and he has a 50/50 chance of re-occurance. We are moving forward with the attitude that the cancer will not return.
We finally got an answer to the burning question; "what caused the nerve damage to Tony's foot and arm?" It turns out it is what we thought all along. Cancer. It is rare....but 3% of the people,with high-grade Non-Hodgkins Lymphoma, will suffer nerve damage. Apparently the cells change and turn into the same type of cell that causes Muscular Dystrophy. Tony's response was, "only 3%... lucky me!"
Again, we were told, that it depends on the degree of damage to the nerve as to how much normal function, if any, will return. It can take a year to 18 months to see any improvement. After 18 months, it will be as good as it's ever going to be.
Tony is riding a stationary bike for 15 minutes per day, and is working up to 1/2 hour per day, as recommended by his physical therapist. Tony lifts free weights to try and strengthen his arms, is eating well and taking vitamins and supplements. We hope to meet with a nutritionist at UCLA, later this month. Tony weighed in at 177 pounds, yesterday. His goal is to weigh 215. The doctor said Tony should begin to gain weight in 4 weeks, and his hair will start coming back in 3 months.
This is my last post on this blog. I cannot fully express our gratitude for all of the prayers and caring thoughts we received from all of you. There were days that your comments, e-mails, cards and text messages kept me lifted up spiritually. I truly could not have kept myself together without those kind, caring, loving messages. As my sister, Dana, said recently...."Jesus was here just once...it's thru one another that we still have Him and see Him." So true.
In this Advent season, as we celebrate the birth of our Savior, we wish all of you
a joyful Christmas.
Love,
Patrice and Tony
Friday, December 3, 2010
Monday, November 22, 2010
Chemotherapy is Officially Over....
Tony and I arrived home late this afternoon from UCLA. The 6th and final round of chemotherapy is over! A Pet Scan will be done in 2 weeks to confirm the remission of cancer, which is what we all expect will be the case.
Tony and I will meet with Dr. Territo, Tony's Oncologist at UCLA, on December 2nd. We will find out at that time, what this next year will require in terms of follow up....ie., blood tests...Pet scans...medications, etc.
Today we feel like we can and are, walking away from cancer. It's over and now we look to the future. Tony will try to gain weight, while I try to lose it. The focus now will be his physical therapy and using any and all treatments in order to improve his nerve function.
We now ask for specific prayers for Tony. That the Lymphoma will not return...and that Tony will regain the use of his arm and leg. We have seen so many positive answers to prayer these last 5 months. You all have been faithful to pray and our Heavenly Father has answered those prayers with a resounding YES! We are so grateful.
Happy Thanksgiving from all of the Frisinas
Tony and I will meet with Dr. Territo, Tony's Oncologist at UCLA, on December 2nd. We will find out at that time, what this next year will require in terms of follow up....ie., blood tests...Pet scans...medications, etc.
Today we feel like we can and are, walking away from cancer. It's over and now we look to the future. Tony will try to gain weight, while I try to lose it. The focus now will be his physical therapy and using any and all treatments in order to improve his nerve function.
We now ask for specific prayers for Tony. That the Lymphoma will not return...and that Tony will regain the use of his arm and leg. We have seen so many positive answers to prayer these last 5 months. You all have been faithful to pray and our Heavenly Father has answered those prayers with a resounding YES! We are so grateful.
Happy Thanksgiving from all of the Frisinas
Wednesday, November 17, 2010
"Lighter" News
Tony has begun his last round of chemotherapy. This final round is "a little lighter", meaning the chemotherapy cocktail has one less drug and the course will run 4 days and not the usual 5. Additionally, Tony did not need to have an Echo-Cardiogram administered today. The Echo has been required before every round of chemo to gage Tony's heart's ejection rate, because his heart was compromised in June when Tony experienced Tumor Lysis Syndrome. Apparently his heart has tested well the past few times.. so the doctors have determined that Tony's heart has recovered and is no longer a concern in regards to the rigors of chemotherapy.
On the way to UCLA this morning, Tony said, "I feel so good today.....I haven't felt this good in months!" It was great to hear those words come from Tony!! In a couple of weeks after the side affects of the last round of chemo subside....Tony should be able to gain weight and ride the stationary bike for longer periods. We both hope Tony will be much stronger by Christmas.
We send our love, thanks and gratitude to all of you who have continued reading this blog and been faithful to pray.
Tony and I wish you the best Thanksgiving ever!
"Taste and see that the Lord is good"..........Psalm 34:8
On the way to UCLA this morning, Tony said, "I feel so good today.....I haven't felt this good in months!" It was great to hear those words come from Tony!! In a couple of weeks after the side affects of the last round of chemo subside....Tony should be able to gain weight and ride the stationary bike for longer periods. We both hope Tony will be much stronger by Christmas.
We send our love, thanks and gratitude to all of you who have continued reading this blog and been faithful to pray.
Tony and I wish you the best Thanksgiving ever!
"Taste and see that the Lord is good"..........Psalm 34:8
Monday, November 15, 2010
Counting Down...
This coming Wednesday morning, Tony will check into UCLA - Santa Monica campus to begin his 6th and final round of chemotherapy. If all goes according to schedule, Tony will be released from UCLA on Monday, just before Thanksgiving.
Just after the Thanksgiving weekend, Tony will have a PET Scan done. We expect the results will be the same as they were after the 4th round.......complete remission.
We will learn at the end of this next round of chemotherapy, what the protocol will be for post chemo medications and blood draws. Dr. Territo, Tony's Oncologist, told us that IF the Lymphoma comes back....it wants to come back within the first 2 years after treatment. I'm sure Tony will have blood tests and other tests administered often over the next 2 years.
Tony is upset today. He saw himself in the mirror this afternoon and believes he has lost more weight. I remind him often that we can see " the light at the end of the tunnel," and after the effects of this last round of treatment are over, he will begin to put on weight, grow his hair and look and feel more like himself. It feels like the hard part is almost over.
My sister and brother-in-law.....Dana and Jim, brought Tony a recumbant bike a couple of weeks ago. Tony has been on the bike at least once a day for 15 minutes, ever since. His Physical Therapist told Tony that the bike was his best hope of building up his leg muscles, in order to walk without the aid of a walker, by next spring.
We covet your continued prayers for complete restoration to Tony's body.
Just after the Thanksgiving weekend, Tony will have a PET Scan done. We expect the results will be the same as they were after the 4th round.......complete remission.
We will learn at the end of this next round of chemotherapy, what the protocol will be for post chemo medications and blood draws. Dr. Territo, Tony's Oncologist, told us that IF the Lymphoma comes back....it wants to come back within the first 2 years after treatment. I'm sure Tony will have blood tests and other tests administered often over the next 2 years.
Tony is upset today. He saw himself in the mirror this afternoon and believes he has lost more weight. I remind him often that we can see " the light at the end of the tunnel," and after the effects of this last round of treatment are over, he will begin to put on weight, grow his hair and look and feel more like himself. It feels like the hard part is almost over.
My sister and brother-in-law.....Dana and Jim, brought Tony a recumbant bike a couple of weeks ago. Tony has been on the bike at least once a day for 15 minutes, ever since. His Physical Therapist told Tony that the bike was his best hope of building up his leg muscles, in order to walk without the aid of a walker, by next spring.
We covet your continued prayers for complete restoration to Tony's body.
Friday, November 12, 2010
Our Mothers...Sisters and Brothers...
Tony and I look forward to next week and completing the 6th and final round of chemotherapy. Tony will be coming home just a few days before Thanksgiving and we have been talking about what we are thankful for this year. There are many, many things, but at the top of our list this year are our brothers....Larry and Keith, our sisters...Debbie, Dana and Leigh......and our mothers...Bonnie and Harriett.
At Tony's Birthday party last weekend, Tony publically thanked 4 women, whom from day one have been with Tony around the clock taking care of so many of his needs. Friends Kathy Larson and Cheryl Franco, sister-in-law Nanette Leonard, and me.
Here and now, we both want to publically acknowledge our gratitude to our siblings and mothers. They have supported and cared for us throughout this ordeal, remaining quietly in the background. Their support has come in a myriad of ways...financially, emotionally, spiritually and physically. It is not an exaggeration to say that we would have not been able to get thru these dark days that have threatened our lives on every level, without them.
Bills would not have been paid, phone calls and all the business of keeping a household together would not have happened. Keeping our children feeling safe and loved through their constant communication(s), was yet another way that they banded together to keep our family from coming unraveled. Our brothers, sisters and mothers have made so many sacrifices on our behalf, they will never know the depth of our gratitude. To say they have been the "wind beneath our wings", doesn't come close to covering it. Solid as rocks, all of them. We love them, are proud of them and are humbled by their love and concern for us.
Tony and I are looking forward to Thanksgiving Day. We have much to be thankful for.
We hope you have a wonderful holiday with your family and friends.
"I will give thanks to the Lord with my whole heart.....I will recount all of your wonderful deeds.....psalm 9:1
At Tony's Birthday party last weekend, Tony publically thanked 4 women, whom from day one have been with Tony around the clock taking care of so many of his needs. Friends Kathy Larson and Cheryl Franco, sister-in-law Nanette Leonard, and me.
Here and now, we both want to publically acknowledge our gratitude to our siblings and mothers. They have supported and cared for us throughout this ordeal, remaining quietly in the background. Their support has come in a myriad of ways...financially, emotionally, spiritually and physically. It is not an exaggeration to say that we would have not been able to get thru these dark days that have threatened our lives on every level, without them.
Bills would not have been paid, phone calls and all the business of keeping a household together would not have happened. Keeping our children feeling safe and loved through their constant communication(s), was yet another way that they banded together to keep our family from coming unraveled. Our brothers, sisters and mothers have made so many sacrifices on our behalf, they will never know the depth of our gratitude. To say they have been the "wind beneath our wings", doesn't come close to covering it. Solid as rocks, all of them. We love them, are proud of them and are humbled by their love and concern for us.
Tony and I are looking forward to Thanksgiving Day. We have much to be thankful for.
We hope you have a wonderful holiday with your family and friends.
"I will give thanks to the Lord with my whole heart.....I will recount all of your wonderful deeds.....psalm 9:1
Wednesday, October 27, 2010
No Conclusion...
Tony came home from the hospital late this afternoon and is resting comfortably after 5 days of chemotherapy. His 5th round is completed, with one last round to go.
The results of the MRI taken of Tony's neck, offered no answer(s) as to why Tony is losing strength in his right hand. The doctors have said that they suspect the Lymphoma is the root cause, but are not certain. Since there seems to be no nerve damage at the spine, they are hopeful that Tony will regain use of his foot, arm and hand over a year's time.
We continue to be patient and wait on the Lord in all circumstances. We trust Him to know what is best for Tony's life...and our life together.
Our request for prayers are specific. That the Lord would heal Tony of all his nerve damage and bath us in His peace.
The results of the MRI taken of Tony's neck, offered no answer(s) as to why Tony is losing strength in his right hand. The doctors have said that they suspect the Lymphoma is the root cause, but are not certain. Since there seems to be no nerve damage at the spine, they are hopeful that Tony will regain use of his foot, arm and hand over a year's time.
We continue to be patient and wait on the Lord in all circumstances. We trust Him to know what is best for Tony's life...and our life together.
Our request for prayers are specific. That the Lord would heal Tony of all his nerve damage and bath us in His peace.
Monday, October 25, 2010
New Battle...
Tony has been experiencing weakness in his RIGHT arm and hand. Today he struggled holding his utensils while trying to eat lunch. The Neurology Doctors and Orthopedic Doctors are now involved and MRI's and Neuro tests will be administered tonight, tomorrow and over the next 3 weeks.
Tony's right foot and left arm have been compromised since June..and many, many tests have been performed without a diagnosis as to cause or recovery. We are hoping these new tests and further investigation will offer some answers as to why Tony is now losing strength in his right arm and hand.
We have been rejoicing over the past few days, since learning that Tony is in remission. We know God has been merciful and gracious to us and never leaves us. We ask for continued prayers for full and complete healing. We hope you all will join us in our petition(s).
Tony's right foot and left arm have been compromised since June..and many, many tests have been performed without a diagnosis as to cause or recovery. We are hoping these new tests and further investigation will offer some answers as to why Tony is now losing strength in his right arm and hand.
We have been rejoicing over the past few days, since learning that Tony is in remission. We know God has been merciful and gracious to us and never leaves us. We ask for continued prayers for full and complete healing. We hope you all will join us in our petition(s).
Friday, October 22, 2010
Confirmed Report
Late yesterday we received the good news that the official report on the Pet Scan shows no active cancer in Tony's body. The doctors have pronounced Tony, cancer free and in remission, at this time. Why complete the last two scheduled rounds of chemotherapy, you ask? Clinical trials have proven that 6 full rounds of chemotherapy gives you the best chance of not having a re-occurance. To that end, Tony checked into UCLA Medical Center...Santa Monica campus, today.
Tony will complete 5 days of treatment and return home on Wednesday. After that it's one more round......and we are finished with chemotherapy. Praise the Lord......He is merciful!!
Tony will complete 5 days of treatment and return home on Wednesday. After that it's one more round......and we are finished with chemotherapy. Praise the Lord......He is merciful!!
Tuesday, October 19, 2010
Good News...
Tony's Pet Scan was administered today at 1:30. We were told at 4:00pm that an "eyeball read" of the scan... shows NO active cancer in Tony's body. We will have to wait 24 to 48 hours to have the official written report, but it will be a surprise to everyone if the report says anything different.
Tony will be admitted to UCLA this Friday to undergo his 5th round of chemotherapy. We were happy to hear that "everything is still on schedule" for the 5th and 6th rounds. We hope and pray that after the 6th round, we will no longer be walking in the world of cancer.
Thank you all for your prayers and support.
Tony will be admitted to UCLA this Friday to undergo his 5th round of chemotherapy. We were happy to hear that "everything is still on schedule" for the 5th and 6th rounds. We hope and pray that after the 6th round, we will no longer be walking in the world of cancer.
Thank you all for your prayers and support.
Sunday, October 17, 2010
Sunday Morning...
Tony and I went to church this morning. It was our intention to attend our Sunday School class, (recently re-named Crossroads), followed by worship service. We even had aspirations of making it to the Crossroads picnic at 12:30....but the outing proved a little too much for Tony.
Tony was so glad that he got to Sunday School. The music, the message and the fellowship were wonderful for both of us. To say it was "good to be back", would be an understatement. We hope when the cancer treatment is over, we will be able to be regular attenders again. Our classmates have been an intrical part in "holding us together" during this time of serious illness. To see all of their faces this morning brought us great joy.......a little bit of heaven I should think.
We look forward to Tuesday. PetScan and results of where and how we stand againist Lymphoma.
Counting on your prayers....
love,
patrice
Tony was so glad that he got to Sunday School. The music, the message and the fellowship were wonderful for both of us. To say it was "good to be back", would be an understatement. We hope when the cancer treatment is over, we will be able to be regular attenders again. Our classmates have been an intrical part in "holding us together" during this time of serious illness. To see all of their faces this morning brought us great joy.......a little bit of heaven I should think.
We look forward to Tuesday. PetScan and results of where and how we stand againist Lymphoma.
Counting on your prayers....
love,
patrice
Wednesday, October 13, 2010
Postphoned..
We got a call this afternoon from a UCLA representative. The PetScan scheduled for tomorrow morning, has been postphoned due to a breakdown with one of the Scans. UCLA has 2 Scans. Tony's PetScan is now scheduled for Tuesday, October 19th at
9:30am. We will meet with the doctor just following the scan...sometime around noon.
I will post the information as soon as we arrive back home, on Tuesday.
Tony is doing well, but is a little emotional tonight. He talked with his Mom over the telephone earlier. Conversations with his mother usually make Tony a little weepy. He is fine now....calling and asking for dinner. So with that, I say goodnight, and God Bless.
9:30am. We will meet with the doctor just following the scan...sometime around noon.
I will post the information as soon as we arrive back home, on Tuesday.
Tony is doing well, but is a little emotional tonight. He talked with his Mom over the telephone earlier. Conversations with his mother usually make Tony a little weepy. He is fine now....calling and asking for dinner. So with that, I say goodnight, and God Bless.
Saturday, October 9, 2010
Discharged
Tony was discharged from the hospital today. He is at home and looks and feels much better than he did a few days ago.
Thursday, the Pet Scan will be done at 8:30am and at 10:30am the results will be communicated to us. We hope to hear that the chemotherapy treatments have been working and the last two treatments will been administered, as planned. I will post the results of the Pet Scan here on the blog on Thursday.
Blessings
l
Thursday, the Pet Scan will be done at 8:30am and at 10:30am the results will be communicated to us. We hope to hear that the chemotherapy treatments have been working and the last two treatments will been administered, as planned. I will post the results of the Pet Scan here on the blog on Thursday.
Blessings
l
Friday, October 8, 2010
Tony is in the Hospital..
Yesterday after a hard week of trying to get the Home Health Care people and the UCLA people to communicate with each other regarding Tony's blood test results, we went to UCLA Hemotology Clinic to have a blood transfusion. It was discovered during the transfusion that Tony had a temperature of close to 102 degrees, blood pressure of 90/54....and his white blood cell count was nil. Tony was admitted to UCLA medical center last evening.
Antibiotics were immediately administered and Tony is feeling better this morning. Not sure when he will come home, but we were told no earlier than Monday. Tony is going to try to convince the doctors to discharge him tomorrow. We shall see.
I grow more and more frustrated with the scheduling/procedures process each time Tony is discharged from the hospital. It seems I have to spend more and more time on the telephone advocating for my husband, because others are not doing their job(s).
It's been a difficult week watching Tony become weaker and weaker, while listening to nurses and P.A.'s tell me... "we haven't gotten a fax yet." Arrrgghhh! Simple secretarial work....a phone call, and Tony would have been getting treated on Monday. Instead it's Thursday and it's too late to keep him out of the hospital.
Please pray for all of us this week!!
Antibiotics were immediately administered and Tony is feeling better this morning. Not sure when he will come home, but we were told no earlier than Monday. Tony is going to try to convince the doctors to discharge him tomorrow. We shall see.
I grow more and more frustrated with the scheduling/procedures process each time Tony is discharged from the hospital. It seems I have to spend more and more time on the telephone advocating for my husband, because others are not doing their job(s).
It's been a difficult week watching Tony become weaker and weaker, while listening to nurses and P.A.'s tell me... "we haven't gotten a fax yet." Arrrgghhh! Simple secretarial work....a phone call, and Tony would have been getting treated on Monday. Instead it's Thursday and it's too late to keep him out of the hospital.
Please pray for all of us this week!!
Saturday, October 2, 2010
PET Scan
Tony's PET Scan has been scheduled for Thursday, October 14th, at UCLA. The findings from this scan will reveal how well the chemotherapy has been working to rid Tony's body of Lymphoma. We are all hoping and expecting to hear that the chemo is working as it should and that the remaining scheduled two rounds will be administered, as planned.
If the last two rounds are administered as scheduled, Tony will be finished with chemotherapy just prior to the Thanksgiving Holiday. More scans will be done, and the doctors will tell us if Tony is cancer free and in remission, or not, at that time.
Today's mail brought a hand drawn picture from our Great- Nephew, Noah Baker. It depicts, in great detail, Noah's Uncle Tony (T-Bone), slaying cancer with his mighty sword. Tony keeps the drawing next to his bed and shows his friends when they come to visit. It is a precious gift, from a precious little boy.
Thank you Noah!
If the last two rounds are administered as scheduled, Tony will be finished with chemotherapy just prior to the Thanksgiving Holiday. More scans will be done, and the doctors will tell us if Tony is cancer free and in remission, or not, at that time.
Today's mail brought a hand drawn picture from our Great- Nephew, Noah Baker. It depicts, in great detail, Noah's Uncle Tony (T-Bone), slaying cancer with his mighty sword. Tony keeps the drawing next to his bed and shows his friends when they come to visit. It is a precious gift, from a precious little boy.
Thank you Noah!
Thursday, September 30, 2010
Feels Like the Long-Haul..
It's been 3 1/2 months since Tony checked into UCLA, for what was supposed to be a 4 day stay. At first it was shocking....then a roller coaster ride, and now that we have accepted our situation, we are in it for "the long-haul."
We can hardly believe that our loved ones are still in the fight with us. Meals still arrive, (Bill and Joyce Thomas just brought in dinner, and prayed for us before leaving), cards are still being delivered, and the phone calls and e-mails expressing concern have not stopped.
It is my experience that people begin to "disconnect" from any situation if it continues long enough. We all grow tired, weary and just want it to be overwith.
Believe me, if Tony and I could run away from it, we would be putting on our Nike's
right now! We can't, but our friends and family can....but they don't.
Tony and I had a good day yesterday. We drove home from UCLA and Tony was feeling very well, almost "chatty." Just as Tony was getting into bed after we arrived home, he fell. It was a hard fall, that wrenched his lower back. He also hit his head pretty hard on the leg of a table. His head is fine, but his back hurts today.
Tony was disheartened by the fall and woke up sad today. That is until John Scolinos and Gary Harter paid him a visit. Tony's friends taking time out of their day to visit, lifted his spirits immensley. Seems like a good time to thank all of you who have visited Tony....so THANK YOU!!
"We wait in hope for the Lord: he is our help and our shield. In him our hearts rejoice, for we trust in his holy name.
May your unfailing love rest upon us, O Lord, even as we put our hope in you."
Psalm 33:20-22
We can hardly believe that our loved ones are still in the fight with us. Meals still arrive, (Bill and Joyce Thomas just brought in dinner, and prayed for us before leaving), cards are still being delivered, and the phone calls and e-mails expressing concern have not stopped.
It is my experience that people begin to "disconnect" from any situation if it continues long enough. We all grow tired, weary and just want it to be overwith.
Believe me, if Tony and I could run away from it, we would be putting on our Nike's
right now! We can't, but our friends and family can....but they don't.
Tony and I had a good day yesterday. We drove home from UCLA and Tony was feeling very well, almost "chatty." Just as Tony was getting into bed after we arrived home, he fell. It was a hard fall, that wrenched his lower back. He also hit his head pretty hard on the leg of a table. His head is fine, but his back hurts today.
Tony was disheartened by the fall and woke up sad today. That is until John Scolinos and Gary Harter paid him a visit. Tony's friends taking time out of their day to visit, lifted his spirits immensley. Seems like a good time to thank all of you who have visited Tony....so THANK YOU!!
"We wait in hope for the Lord: he is our help and our shield. In him our hearts rejoice, for we trust in his holy name.
May your unfailing love rest upon us, O Lord, even as we put our hope in you."
Psalm 33:20-22
Saturday, September 25, 2010
The 4th Round has Begun...
Tony checked into UCLA this morning and everything was ready and waiting for him. Everytime Tony is admitted to the 6th floor it's like coming back to visit friends.....nurses, caretakers, doctors....even the dining staff that delivers Tony's meals.
An Echo-cardiogram was performed on Tony late this afternoon to determine if his heart ejection rate is strong enough to accept the chemo agent, Doxorubicin. It was.....and was in the 60% range, (60-65% is considered normal range.) This means his heart is getting stronger every day, as the last two Echos' revealed Tony's ejection rate at 50-55%.
The scans that need to be done following this 4th round of chemo, will not be done next week, while Tony is in the hospital. The doctors told us, today, that the scans should be done 4 or 5 days following the last day of chemo, in order to get the best possible data on Tony's progress againist Lymphoma. We will have to return to UCLA on Monday or Tuesday, October 4th or 5th, to have all the scans performed. Hopefully it will be no more than 24 hours before we are informed of the results.
Tony's spirits are high, and he feels he is winning the battle againist cancer. We will be shocked if we hear anything counter to that belief after the scans are read. We will post the results and the doctors comments on this blog as soon as we have them.
Please continue to pray for Tony and our entire family. The stress is beginning to show, and somedays I feel like my family is coming unraveled. I thought we were all handeling this situation pretty well.....but it's starting to "take it's toll".
The devotions I read each morning to Tony and now Vanessa and Michael, DO help to keep us focused on our Savior. How blessed we are to have Him, know Him and be able to count on Him to never leave us.
Whatever happens next week, next month or next year, he remains the same, and faithful to His people.
May it all Glorify Him.
An Echo-cardiogram was performed on Tony late this afternoon to determine if his heart ejection rate is strong enough to accept the chemo agent, Doxorubicin. It was.....and was in the 60% range, (60-65% is considered normal range.) This means his heart is getting stronger every day, as the last two Echos' revealed Tony's ejection rate at 50-55%.
The scans that need to be done following this 4th round of chemo, will not be done next week, while Tony is in the hospital. The doctors told us, today, that the scans should be done 4 or 5 days following the last day of chemo, in order to get the best possible data on Tony's progress againist Lymphoma. We will have to return to UCLA on Monday or Tuesday, October 4th or 5th, to have all the scans performed. Hopefully it will be no more than 24 hours before we are informed of the results.
Tony's spirits are high, and he feels he is winning the battle againist cancer. We will be shocked if we hear anything counter to that belief after the scans are read. We will post the results and the doctors comments on this blog as soon as we have them.
Please continue to pray for Tony and our entire family. The stress is beginning to show, and somedays I feel like my family is coming unraveled. I thought we were all handeling this situation pretty well.....but it's starting to "take it's toll".
The devotions I read each morning to Tony and now Vanessa and Michael, DO help to keep us focused on our Savior. How blessed we are to have Him, know Him and be able to count on Him to never leave us.
Whatever happens next week, next month or next year, he remains the same, and faithful to His people.
May it all Glorify Him.
Thursday, September 16, 2010
Overwhelmed with Love and Support
Since this ordeal began, last spring, Tony and I have had a lot of support from neighbors, friends and family. I think I would be hard pressed to find another family who has been given as much as we have in the way of visits, cards, meals, e-mails, comments on this blog, prayers and financial help. Everyone has pulled together to help Tony get well and help our family get through these dark days.
This past week, I have gone out to run errands just 3 times. During two of those outings I have run into people that know our situation. Both times I have gotten hugs, tears, prayers and after arriving home, found money in my purse. One friend tried to pay for my (huge) grocery tab while I was checking out. I was able to circumvent her efforts, only to find the money in my purse after she left.
The mailman delivers cards that cheer us, nearly everyday. Lovely written words fill the cards and I read each one to Tony.
Yesterday I found a beautiful package on my porch from Bob and Betty Nease. A perfect devotional book and a gift card to Claro's. I think Betty or Bob read my blog and found out that Tony loves Claro's! I now read a devotional to my husband each morning, when he wakes. I found flowers on my doorstep last week. No note to say who they were from, and that's not the first time.
There are so many other things that have happened, things that have been said and done on our behalf, but there is not enough space to write it all down, here. I have expressed our love and gratitude many times on this blog. What I want to express now is just this: Those of you who say my glass is always half full, that I see the best in people....and that I walk around with rose colored glasses on....you may be right. However, I have a lot of evidence to support my point of view.
This past week, I have gone out to run errands just 3 times. During two of those outings I have run into people that know our situation. Both times I have gotten hugs, tears, prayers and after arriving home, found money in my purse. One friend tried to pay for my (huge) grocery tab while I was checking out. I was able to circumvent her efforts, only to find the money in my purse after she left.
The mailman delivers cards that cheer us, nearly everyday. Lovely written words fill the cards and I read each one to Tony.
Yesterday I found a beautiful package on my porch from Bob and Betty Nease. A perfect devotional book and a gift card to Claro's. I think Betty or Bob read my blog and found out that Tony loves Claro's! I now read a devotional to my husband each morning, when he wakes. I found flowers on my doorstep last week. No note to say who they were from, and that's not the first time.
There are so many other things that have happened, things that have been said and done on our behalf, but there is not enough space to write it all down, here. I have expressed our love and gratitude many times on this blog. What I want to express now is just this: Those of you who say my glass is always half full, that I see the best in people....and that I walk around with rose colored glasses on....you may be right. However, I have a lot of evidence to support my point of view.
Sunday, September 12, 2010
Better..
Tony's fever broke on Friday and he is feeling much better. Additionally he is now out of nadir (the ill effects of the chemo), and has been able to have his meals with the family outside of the bedroom. Football season is now underway and Tony has been enjoying watching the games and commenting on the calls, plays..etc. It's nice to see Tony back in his recliner, while watching "the game" with friends and family.
Jeffrey is the physical therapist who comes to the house and exercises Tony, concentrating on his leg/foot. Tony and Jeffrey have decided that Tony will be walking without a walker, by next summer. Both Tony and Jeffrey seem bound and determined to make that goal a reality. To that end, Tony exercises everyday, is getting in and out of bed and up and out of chairs. He is walking through the house as much as he can.
Tony weighs 177 lbs,and continues to gain small amounts of weight, which we consider a victory. Tony was down to 165 lbs at one time. We hope he gets back up to 200 to 210 lbs., by Christmas.
Tony will be admitted to UCLA on Friday, September 24th, for his 4th round of chemotherapy. Scans (PET, CT and MRI's) and blood work will be done, following this round, to determine whether or not the chemotherapy is working, or if the doctors need to change treatment.
A big thank you to all of you who have commented on this blog, or sent us e-mail. Both Tony and I feel encouraged and uplifted just knowing you are thinking and caring about us. We feel the prayers and know the Holy Spirit never leaves us.
We are grateful.
Jeffrey is the physical therapist who comes to the house and exercises Tony, concentrating on his leg/foot. Tony and Jeffrey have decided that Tony will be walking without a walker, by next summer. Both Tony and Jeffrey seem bound and determined to make that goal a reality. To that end, Tony exercises everyday, is getting in and out of bed and up and out of chairs. He is walking through the house as much as he can.
Tony weighs 177 lbs,and continues to gain small amounts of weight, which we consider a victory. Tony was down to 165 lbs at one time. We hope he gets back up to 200 to 210 lbs., by Christmas.
Tony will be admitted to UCLA on Friday, September 24th, for his 4th round of chemotherapy. Scans (PET, CT and MRI's) and blood work will be done, following this round, to determine whether or not the chemotherapy is working, or if the doctors need to change treatment.
A big thank you to all of you who have commented on this blog, or sent us e-mail. Both Tony and I feel encouraged and uplifted just knowing you are thinking and caring about us. We feel the prayers and know the Holy Spirit never leaves us.
We are grateful.
Wednesday, September 8, 2010
A Little Rough
Tony has not felt well over the past 48 hours. He is running a low-grade fever and is weak. Yesterday the home care nurse drew some of Tony's blood. This afternoon, Dr. Territo from UCLA Oncology called and said Tony's hemagloben count is too low and Tony will need to have a 3 -bag blood transfusion, tomorrow morning at UCLA. Additionally, the fever indicates a possible infection and Tony is now on the antibiotic, Cipro.
The home care nurse taught Michael how to flush out the lines that enter into Tony's right arm. Michael will teach Vanessa and Patrice, so that either of them, can take care of this daily task. Tony was able to get a shower, with Michael's help, and the aid of a shower chair. He says it feels great to have a shower after months of sponge baths.
Tonight's dinner was brought to us by friends... Bill and Linda Larew. It was so nice to walk in from work and see that beautiful hot meal, waiting for my family. Tony and I were able to eat together while watching a little tv, this evening. We find ourselves enjoying the simpliest of things these days.
We are very much looking forward to this upcoming weekend. Our 4 month old Grandson is coming for an overnight visit.
I don't know who is more excited. Vanessa, Tony or me. I know the camera will get plenty of use this weekend.
The home care nurse taught Michael how to flush out the lines that enter into Tony's right arm. Michael will teach Vanessa and Patrice, so that either of them, can take care of this daily task. Tony was able to get a shower, with Michael's help, and the aid of a shower chair. He says it feels great to have a shower after months of sponge baths.
Tonight's dinner was brought to us by friends... Bill and Linda Larew. It was so nice to walk in from work and see that beautiful hot meal, waiting for my family. Tony and I were able to eat together while watching a little tv, this evening. We find ourselves enjoying the simpliest of things these days.
We are very much looking forward to this upcoming weekend. Our 4 month old Grandson is coming for an overnight visit.
I don't know who is more excited. Vanessa, Tony or me. I know the camera will get plenty of use this weekend.
Monday, September 6, 2010
Good Day...
Yesterday, was a very good day. Tony walked down the hall and into the family room, where he was able to sit in the recliner for over 2 hours! All of our Frisina side of the family were here and everyone ate the delicious lunch that Debbie brought, from one of Tony's favorite places....Claro's Italian Deli. Tony was able to visit, eat and enjoy the day.
When Tony returned to his bedroom, he found a big surprise. Brother Larry, had bought and installed an air conditioner....what a difference! Now the master bedroom feels as good as the rest of the house, and Tony is resting and sleeping much easier. Larry (Airde), has always been a caring, generous brother...so this act of kindness is not out of character for him. Thank you Airde!
We are expecting the Home Care Nurse to stop in today. She will draw some blood and clean the tubes that remain in Tony's arm. The blood will be sent to UCLA and we will be contacted tomorrow as to whether or not Tony's hemoglobin count is above 9.0. If not, then it will mean a trip to Huntington Hospital for a transfusion.
Even in Tony's weakened condition, Tony is a good father, loving husband and friend. He now counsels, disaplines and exercises his responsibilities, as head of the family, from his bed. Sister-in-law, Dana, says.. "he acts like a Don, or a Godfather", demanding kisses on the check before people leave. Everyday brings a little something new from Tony. Never a dull moment, per usual around the Frisina house.
We hope all of you have a relaxing day, this Labor Day, and you enjoy and delight in family and friends. They are the BEST things in this life.
When Tony returned to his bedroom, he found a big surprise. Brother Larry, had bought and installed an air conditioner....what a difference! Now the master bedroom feels as good as the rest of the house, and Tony is resting and sleeping much easier. Larry (Airde), has always been a caring, generous brother...so this act of kindness is not out of character for him. Thank you Airde!
We are expecting the Home Care Nurse to stop in today. She will draw some blood and clean the tubes that remain in Tony's arm. The blood will be sent to UCLA and we will be contacted tomorrow as to whether or not Tony's hemoglobin count is above 9.0. If not, then it will mean a trip to Huntington Hospital for a transfusion.
Even in Tony's weakened condition, Tony is a good father, loving husband and friend. He now counsels, disaplines and exercises his responsibilities, as head of the family, from his bed. Sister-in-law, Dana, says.. "he acts like a Don, or a Godfather", demanding kisses on the check before people leave. Everyday brings a little something new from Tony. Never a dull moment, per usual around the Frisina house.
We hope all of you have a relaxing day, this Labor Day, and you enjoy and delight in family and friends. They are the BEST things in this life.
Sunday, September 5, 2010
Labor Day Weekend
Tony is enjoying being home and after 4 days we are beginning to get into a routine here at home. Patrice, Michael and Vanessa each have their specific duties and so far everyone is doing well. Michael "exercises" Tony 5 days a week, and Vanessa takes over the remaining 2 days. With the physical therapist starting 3 days this week, Tony will be getting plenty of exercise.
Tony is looking forward to seeing family, in his own home, this weekend. Tony's Mom, sister, brother and niece and nephew are due in a couple of hours with lunch for everyone, in hand. Tomorrow, Tony's sister-in-law Dana and family will come to visit.
The Oncologist told Tony last week, that 3 more rounds of chemotherapy will be administered. After the next round (4th), the scans will be done. PET Scan, MRI's and CT's....all to determine how well the chemo is working in getting rid of the cancer. At that time, the doctors will continue using the same chemo agents or change course. We will keep you posted.
Our request for prayers at this time are specific. That Tony's spirits remain high, and that the nerve damage to his arm and leg will be overcome. That the exercises do and will help Tony recover the use of his arm and leg.
Tony is looking forward to seeing family, in his own home, this weekend. Tony's Mom, sister, brother and niece and nephew are due in a couple of hours with lunch for everyone, in hand. Tomorrow, Tony's sister-in-law Dana and family will come to visit.
The Oncologist told Tony last week, that 3 more rounds of chemotherapy will be administered. After the next round (4th), the scans will be done. PET Scan, MRI's and CT's....all to determine how well the chemo is working in getting rid of the cancer. At that time, the doctors will continue using the same chemo agents or change course. We will keep you posted.
Our request for prayers at this time are specific. That Tony's spirits remain high, and that the nerve damage to his arm and leg will be overcome. That the exercises do and will help Tony recover the use of his arm and leg.
Thursday, September 2, 2010
Tony is Home!
After 70 days in the hospital, Tony arrived home late yesterday. His just cleaned and sanitized bedroom, with crisp new sheets and bedding awaited him, thanks to dear friend Maria Dultz. While Patrice, Cheryl and Kathy were at UCLA, Maria was busy on the homefront.
A bright, beautiful sign, hung on the front of the house, greeted Tony. A little fairy told us that the artist was Lauryn Dultz. Thank you Lauryn!
Tony is very happy to be home and had a good uninterupted night's sleep. Kathy was here bright and early this morning to administer the plethora of medications Tony must take. Fifteen different prescriptions 2-3 times per day.....she is even hand feeding Tony the meds, buried in applesauce!
Tony was touched and relieved to see the modifications made to the bathroom and bedroom. Everything was done in a few hours on Monday night, when Tony's buddies showed up and went to work. Wow!! Things really get done when you have Doug Elffers, Dale Brown, Ray Lumis, Don Haggstrom, Walter Trypucko and John Scolinos
armed with tools and ready to help their friends.
I (Patrice), was thinking earlier today, that over the past 70 days, Tony and I have talked a lot more about the blessings of friends and family and how so many of you have truly "been there" for us, than we have talked about the cancer. We have loved and been loved. If there is a blessing in walking thru this difficult time, it's just that, love.
**I see this morning that our niece, Heather, quoted the PERFECT scripture in her response to my blog, above.
"And this commandment I give to you, that you love one another, even as I have loved you" John 13:34
A bright, beautiful sign, hung on the front of the house, greeted Tony. A little fairy told us that the artist was Lauryn Dultz. Thank you Lauryn!
Tony is very happy to be home and had a good uninterupted night's sleep. Kathy was here bright and early this morning to administer the plethora of medications Tony must take. Fifteen different prescriptions 2-3 times per day.....she is even hand feeding Tony the meds, buried in applesauce!
Tony was touched and relieved to see the modifications made to the bathroom and bedroom. Everything was done in a few hours on Monday night, when Tony's buddies showed up and went to work. Wow!! Things really get done when you have Doug Elffers, Dale Brown, Ray Lumis, Don Haggstrom, Walter Trypucko and John Scolinos
armed with tools and ready to help their friends.
I (Patrice), was thinking earlier today, that over the past 70 days, Tony and I have talked a lot more about the blessings of friends and family and how so many of you have truly "been there" for us, than we have talked about the cancer. We have loved and been loved. If there is a blessing in walking thru this difficult time, it's just that, love.
**I see this morning that our niece, Heather, quoted the PERFECT scripture in her response to my blog, above.
"And this commandment I give to you, that you love one another, even as I have loved you" John 13:34
Tuesday, August 31, 2010
Almost Home...
Tony will finish his 3rd round of chemotherapy tomorrow (Tuesday) evening. He will be released from UCLA Medical Center the following day. We here at home have everything in place and we anxiously await Tony's arrival.
All is going well and a nurse will be coming into our home over Labor Day Weekend to draw blood and check Tony's vital signs. Tony will be in Nadir and very weak over the Labor Day Weekend, as this is when the effects of the chemo will "hit him" the hardest. Tony's immune system will be compromised until the Wednesday following Labor Day. After that he will be feeling well and hopes to get outside for some fresh air and sunshine.
Tony has a very good attitude about his limitations. The doctors are encouraging Tony to excercise each and everyday and are believing that the nerve damage to his arm and leg is peripheral damage that can be reversed. It will take a lot of work and affirmative answer(s) to prayer, but Tony says he is "up to it" and has "set his goals."
As always, we would ask that you pray for Tony's nerves to be restored, cancer to be defeated and that we would seek His will in all of it.
All is going well and a nurse will be coming into our home over Labor Day Weekend to draw blood and check Tony's vital signs. Tony will be in Nadir and very weak over the Labor Day Weekend, as this is when the effects of the chemo will "hit him" the hardest. Tony's immune system will be compromised until the Wednesday following Labor Day. After that he will be feeling well and hopes to get outside for some fresh air and sunshine.
Tony has a very good attitude about his limitations. The doctors are encouraging Tony to excercise each and everyday and are believing that the nerve damage to his arm and leg is peripheral damage that can be reversed. It will take a lot of work and affirmative answer(s) to prayer, but Tony says he is "up to it" and has "set his goals."
As always, we would ask that you pray for Tony's nerves to be restored, cancer to be defeated and that we would seek His will in all of it.
Friday, August 27, 2010
Third Round Has Begun...
Tony was transported from Huntington Hospital to UCLA this morning. They were waiting for him and began the chemotherapy late this afternoon. All familiar faces welcomed us back to UCLA 6th floor Oncology....it was hugs and smiles all around.
This third round of chemo will be finished late Tuesday, and Tony will be COMING HOME on Wednesday or Thursday. Preparations are in full swing for Tony's homecoming.
I (Patrice), will be out getting equipment from Bed, Bath and Beyond and the Convalesant Aid Society, this weekend. Dale Brown will be rounding up Tony's buddies, Don, John and Ray to come and modify the house and complete various projects that need doing.
Tony cannot travel up or down stairs, at this point. Luckily the back entrance to our home is flat, with just a 4-inch step-up into the house.
Once Tony arrives home, a health care nurse, physical therapist and occupational therapist will come to the house and work with Tony 3 days a week. Patrice, Michael and Vanessa, along with Larry, Kathy and Cheryl will take over the therapy sessions the remaining 4 days.
Please pray that Tony's transition home will go smoothly, safely and without incident.
This third round of chemo will be finished late Tuesday, and Tony will be COMING HOME on Wednesday or Thursday. Preparations are in full swing for Tony's homecoming.
I (Patrice), will be out getting equipment from Bed, Bath and Beyond and the Convalesant Aid Society, this weekend. Dale Brown will be rounding up Tony's buddies, Don, John and Ray to come and modify the house and complete various projects that need doing.
Tony cannot travel up or down stairs, at this point. Luckily the back entrance to our home is flat, with just a 4-inch step-up into the house.
Once Tony arrives home, a health care nurse, physical therapist and occupational therapist will come to the house and work with Tony 3 days a week. Patrice, Michael and Vanessa, along with Larry, Kathy and Cheryl will take over the therapy sessions the remaining 4 days.
Please pray that Tony's transition home will go smoothly, safely and without incident.
Sunday, August 22, 2010
Feeling Good...
Tony is feeling pretty good! His personality, humor and wit have returned and we have shared a wonderful last couple of days together. Yesterday Tony said he felt like things were almost back to normal and that he is looking forward to coming home in early September. To that end, he has me, (Patrice), making lists of things to do and have in place when he arrives home.
This morning, Tony's brother Larry, went to work on Tony's hair. It's gone now. All that is left is a mustashe and gotee. We are curious as to how Tony's hair will grow back....dark, white...straight..curly??? It was the topic of conversation this morning.
There are many hurdles to clear over the next couple of months in regards to winning the battle againist Lymphoma....and many more months of physical therapy to regain strength in Tony's leg and arm. We have been told everything from "this is the best his foot and arm will recover"....to..."some or all of the strength may come back depending on how hard you work".....to "we don't know". So, after all the tests are in, and all the doctors and physical therapists have spoken, we know our Heavenly Father, the great physician, knows what Tony's future holds. We wait and watch for His will to be revealed to us.
This morning, Tony's brother Larry, went to work on Tony's hair. It's gone now. All that is left is a mustashe and gotee. We are curious as to how Tony's hair will grow back....dark, white...straight..curly??? It was the topic of conversation this morning.
There are many hurdles to clear over the next couple of months in regards to winning the battle againist Lymphoma....and many more months of physical therapy to regain strength in Tony's leg and arm. We have been told everything from "this is the best his foot and arm will recover"....to..."some or all of the strength may come back depending on how hard you work".....to "we don't know". So, after all the tests are in, and all the doctors and physical therapists have spoken, we know our Heavenly Father, the great physician, knows what Tony's future holds. We wait and watch for His will to be revealed to us.
Saturday, August 21, 2010
Making Progress...
Before I update everyone on Tony's progress, we (Tony and Patrice), want to say Happy Birthday to our dear niece, Heather Baker. She is a blessing in our lives and has been since the day she was born. Heather always comments on "the blog", and sends scriptures, via text message to us daily....keeping us uplifted and mindful of His word. We love you Heather!
Today I watched Tony lift himself out of his hospital bed, grab onto his walker and walk 200 feet. He was exhausted after the journey around the 4th floor of the hospital, but feels like he is accomplishing a goal he has set for himself. Being able to get out of bed and walk around the house is what we all have hoped and prayed for. It looks as if this will happen, and we are excited that Tony may be coming home before Labor Day Weekend.
The second round of chemotherapy and it's effects are over. Tony's "numbers" are back in normal range and he was strong through-out the treatment and recovery phase. Tony's 3rd round of chemo begins in one week. He will be transported back to UCLA next weekend, for that purpose.
The charge nurse at Huntington Hospital found out that Tony and I were Christians. She came into our room today and asked if she could pray for Tony. We were thrilled, and reminded once again, that His love comes to us through one another. How grateful we are for our brothers and sisters in Christ.
"I pray that you may be active in sharing your faith, so that you will have a full understanding of every good thing we have in Christ. Your love has given me great joy and encouragement".....Philemon 1:6-7
Today I watched Tony lift himself out of his hospital bed, grab onto his walker and walk 200 feet. He was exhausted after the journey around the 4th floor of the hospital, but feels like he is accomplishing a goal he has set for himself. Being able to get out of bed and walk around the house is what we all have hoped and prayed for. It looks as if this will happen, and we are excited that Tony may be coming home before Labor Day Weekend.
The second round of chemotherapy and it's effects are over. Tony's "numbers" are back in normal range and he was strong through-out the treatment and recovery phase. Tony's 3rd round of chemo begins in one week. He will be transported back to UCLA next weekend, for that purpose.
The charge nurse at Huntington Hospital found out that Tony and I were Christians. She came into our room today and asked if she could pray for Tony. We were thrilled, and reminded once again, that His love comes to us through one another. How grateful we are for our brothers and sisters in Christ.
"I pray that you may be active in sharing your faith, so that you will have a full understanding of every good thing we have in Christ. Your love has given me great joy and encouragement".....Philemon 1:6-7
Wednesday, August 18, 2010
Working Hard...
Tony is working hard 3 hours per day with the physical therapist(s) at Huntington Hospital, and will transport back to UCLA on Saturday, August 28th. Tony's goal is to be able to stand up from a sitting position, unassisted. He hopes to be able to do this by the time he comes home, after his third round of chemotherapy in early September.
Tony is recovering very well from his second round of chemotherapy. No nausea or sickness...just a little tired. The hair on his scalp and face have fallen out, to the point that Tony has decided to shave his head. Tony has asked Patrice to buy a "book that illustrates hats", as he wants to show Patrice which hats to purchase!
The 10-inch incision across Tony's abdomen has completely healed.
Visitors come each day and help pass the time. Tony likes hearing about what is going on in the lives of our family and friends. Tony has also asked friend, Kathy Larson, to re-tell (over and over), the stories of what happened while he was unconscience. Good friend that she is, Kathy re-tells the stories as many times as Tony asks to hear them.
"A friend loves at all times"....proverbs 17:17
Tony is recovering very well from his second round of chemotherapy. No nausea or sickness...just a little tired. The hair on his scalp and face have fallen out, to the point that Tony has decided to shave his head. Tony has asked Patrice to buy a "book that illustrates hats", as he wants to show Patrice which hats to purchase!
The 10-inch incision across Tony's abdomen has completely healed.
Visitors come each day and help pass the time. Tony likes hearing about what is going on in the lives of our family and friends. Tony has also asked friend, Kathy Larson, to re-tell (over and over), the stories of what happened while he was unconscience. Good friend that she is, Kathy re-tells the stories as many times as Tony asks to hear them.
"A friend loves at all times"....proverbs 17:17
Friday, August 13, 2010
Back in Pasadena...
Tony is being transported to Huntington Hospital as I write this. Tony will spend the next 12 days in the rehabilitation unit and work with the physical and occupational therapists. Tony is happy that he has pain in his left bicep, as he has had no sensation in that area since he woke up in ICU. We think maybe his nerves are beginning to regenerate. We also take this as a sign, that the chemotherapy is working and destroying the cancer cells that have seized Tony's arm and leg.
Tony now weighs 177 pounds and continues to have a healthy appetite. Patrice will meet the ambulance at Huntington Hospital this afternoon with a #2 meal (with chocolate shake) from In-N-Out.
Just before Tony left UCLA today, the Head and Neck Specialist injected collagen into Tony's left vocal cord, closing it up enough so that Tony can sip regular liquids. His voice is almost back to normal. It may take more collagen injections before Tony's vocal cord is fully functioning.
We have seen many, many, affirmative answers to prayer, and many small and large miracles. We may write a book when this is all over!
Giving thanks today, for all the prayers that have been prayed on Tony's behalf.
Tony now weighs 177 pounds and continues to have a healthy appetite. Patrice will meet the ambulance at Huntington Hospital this afternoon with a #2 meal (with chocolate shake) from In-N-Out.
Just before Tony left UCLA today, the Head and Neck Specialist injected collagen into Tony's left vocal cord, closing it up enough so that Tony can sip regular liquids. His voice is almost back to normal. It may take more collagen injections before Tony's vocal cord is fully functioning.
We have seen many, many, affirmative answers to prayer, and many small and large miracles. We may write a book when this is all over!
Giving thanks today, for all the prayers that have been prayed on Tony's behalf.
Saturday, August 7, 2010
Going Well..
Tony's second round of chemotherapy began late yesterday. The chemo agent Doxorubicin was administered and a heart monitor was hooked up in order to monitor Tony's heart. So far....all is well! I am looking at the orange colored Doxorubicin right now, and the bag is almost empty, while Tony's heart remains steady. This is a huge affirmative answer to prayer.
Tony's second round of chemo will take 6 days to complete.
Tony's appetite still remains strong, and he is eating 3 full meals with snacks and dessert each day. We are hoping he will be able to put some weight on, even through the treatment phase. We also pray that as the chemo destroys the cancer cells, the strength will return to his weak muscles. On Monday, the Head and Neck doctors will come in and assess Tony's swallowing problems and hopefully treat him, so that his voice and ability to swallow water will return to normal. In the meantime, Tony is walking 70 feet at a time, with the walker and doing 3 + hours of physical therapy per day.
" Give thanks with a grateful heart, give thanks to the Holy One, give thanks because he's given Jesus Christ, His son" (Hymn)
Tony's second round of chemo will take 6 days to complete.
Tony's appetite still remains strong, and he is eating 3 full meals with snacks and dessert each day. We are hoping he will be able to put some weight on, even through the treatment phase. We also pray that as the chemo destroys the cancer cells, the strength will return to his weak muscles. On Monday, the Head and Neck doctors will come in and assess Tony's swallowing problems and hopefully treat him, so that his voice and ability to swallow water will return to normal. In the meantime, Tony is walking 70 feet at a time, with the walker and doing 3 + hours of physical therapy per day.
" Give thanks with a grateful heart, give thanks to the Holy One, give thanks because he's given Jesus Christ, His son" (Hymn)
Thursday, August 5, 2010
First Night Back at UCLA..
It's 10pm and I am sitting in the dark in our hospital room. Tony has been given his medications for the night and is drifting off to sleep. Tony's return from Huntington Hospital to UCLA this afternoon went smoothly. I am relieved that he is much calmer this time around and is confident as he begins his second round of chemotherapy, in the morning. The familiar nurses and care partners have helped both of us feel welcomed back to the 6th floor. We were glad to find out that Megan and Miki would be Tony's nurses tonight.
Both Tony and I have accepted our "new reality". It no longer feels like a bad dream or as if we are in shock. It is now a journey that we are taking together. Each day is the same and yet a little different. Tony's humor has returned, and he smiles more now. Tony's weight dropped to 165 pounds, but he has gained 5 pounds over the past few days and now weighs 170. I continue to
order food, food and more food for Tony, who has been compliant and has had a very healthy appetite over the past 2 weeks.
Drinking regular fluids is impossible for Tony, until his swallowing problems are resolved. To that end, the Head/Neck and Swallowing doctors will see Tony tomorrow and discuss possible remedies. Tony's strong desire, at present, is to be able to gulp down an ice cold drink without having to add in the "thick-it" powder.......yuck!
Cards and letters continue to come in the mail, and I bring them to the hospital and share them with Tony. So many kind and caring words have been conveyed from our family and friends. We hold them all close to our heart(s). Tony and I talk often about enjoying our family and friends again, outside of the hospital. We hope that becomes a reality.
With that I say goodnight and blessings to all of you.
Both Tony and I have accepted our "new reality". It no longer feels like a bad dream or as if we are in shock. It is now a journey that we are taking together. Each day is the same and yet a little different. Tony's humor has returned, and he smiles more now. Tony's weight dropped to 165 pounds, but he has gained 5 pounds over the past few days and now weighs 170. I continue to
order food, food and more food for Tony, who has been compliant and has had a very healthy appetite over the past 2 weeks.
Drinking regular fluids is impossible for Tony, until his swallowing problems are resolved. To that end, the Head/Neck and Swallowing doctors will see Tony tomorrow and discuss possible remedies. Tony's strong desire, at present, is to be able to gulp down an ice cold drink without having to add in the "thick-it" powder.......yuck!
Cards and letters continue to come in the mail, and I bring them to the hospital and share them with Tony. So many kind and caring words have been conveyed from our family and friends. We hold them all close to our heart(s). Tony and I talk often about enjoying our family and friends again, outside of the hospital. We hope that becomes a reality.
With that I say goodnight and blessings to all of you.
Tuesday, August 3, 2010
It's Back to UCLA
Tony will be transported to UCLA from Huntington Hospital, tomorrow. We received good news this afternoon regarding Tony's heart muscle recovery. His ejection factor has improved to 50 - 55%, which tells us that the Doxirubicin (chemotherapy agent), can be administered during this next round of treatment. This is what we have been praying for since the Oncologist told us that Doxirubicin is a "first line of defense" againist high-grade Lymphoma.
Tony has enjoyed many visitors over the past 12 days while at Huntington. The room was light and bright, with flowers, posters, cards and candy everywhere. All of the physical therapists that worked with Tony were cheerful and kind, making the painful treatment sessions a little less difficult. Tony walks 50 feet a day with the aid of a walker, and now has a lightweight brace on his right lower leg and foot. This brace keeps his toes up so that he does not have to "drag" his foot when walking.
Tony's voice is very raspy, and he cannot drink any liquid that is not thickened to a honey-like consistency. We hope to address this problem this week with the Head and Neck doctors at UCLA.
Tony is scheduled to begin his 2nd round of Chemotherapy later this week. Please pray that Tony will be able to recover quickly and have minimal to no side effects.
We appreciate and count on your prayers at this crucial time.
Three times, I pleaded with the Lord to take it away from me. But he said to me, "My grace is sufficient for you, and my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. 2 Corinthians 12:8-9
Tony has enjoyed many visitors over the past 12 days while at Huntington. The room was light and bright, with flowers, posters, cards and candy everywhere. All of the physical therapists that worked with Tony were cheerful and kind, making the painful treatment sessions a little less difficult. Tony walks 50 feet a day with the aid of a walker, and now has a lightweight brace on his right lower leg and foot. This brace keeps his toes up so that he does not have to "drag" his foot when walking.
Tony's voice is very raspy, and he cannot drink any liquid that is not thickened to a honey-like consistency. We hope to address this problem this week with the Head and Neck doctors at UCLA.
Tony is scheduled to begin his 2nd round of Chemotherapy later this week. Please pray that Tony will be able to recover quickly and have minimal to no side effects.
We appreciate and count on your prayers at this crucial time.
Three times, I pleaded with the Lord to take it away from me. But he said to me, "My grace is sufficient for you, and my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. 2 Corinthians 12:8-9
Friday, July 30, 2010
Ups and Downs...
Tony has been experiencing weakness in multiple areas of his body. The Oncologist(s), suggest that the Lymphoma is the underlying cause of these problems. Yesterday after the results of the swallow test were read, we were told that Tony's Epicgloden (flap that opens and closes againist the larynex in his throat), is not functioning at full capacity. This presents a danger for Tony, in that he could asperate his food or drink. Tony is now adding "honey-thick" to all beverages. If the swallowing problems persist, Tony will have to be put on a feeding tube.
All of us, including the doctors, are hoping the chemotherapy will kill the cancer cells, allowing strength to return to all weakened areas of Tony's body. The good news is, the last spinal tap showed no cancer in the spinal column. This test will be done during every round of chemotherapy.
Things are in motion for Tony's transfer back to UCLA sometime next week (mid to late), where he will begin his 2nd round of chemo. In the meantime, physical therapy is going well and Tony walked 25 feet today with the aid of a walker. Tony is eating 3 full meals a day and supplementing with protein shakes, usually eating a peanut butter and jelly sandwich in the middle of the night.
Patrice gives Tony a final backrub every evening before leaving for home. Tony is usually asleep by the time the backrub is finished. Visitors continue to lift Tony's spirits each day, and both Tony and Patrice feel cared about and loved by friends and family. The Pastoral visits are wonderful, and their church family has tended to them and their children in many ways. Their Homebuilder classmates at Sierra Madre Congregational Church are setting up a video cam, so that Tony can speak to the class "face to face" this Sunday.
"Whatever is good, whatever is lovely.....think on these"...Ecc:
All of us, including the doctors, are hoping the chemotherapy will kill the cancer cells, allowing strength to return to all weakened areas of Tony's body. The good news is, the last spinal tap showed no cancer in the spinal column. This test will be done during every round of chemotherapy.
Things are in motion for Tony's transfer back to UCLA sometime next week (mid to late), where he will begin his 2nd round of chemo. In the meantime, physical therapy is going well and Tony walked 25 feet today with the aid of a walker. Tony is eating 3 full meals a day and supplementing with protein shakes, usually eating a peanut butter and jelly sandwich in the middle of the night.
Patrice gives Tony a final backrub every evening before leaving for home. Tony is usually asleep by the time the backrub is finished. Visitors continue to lift Tony's spirits each day, and both Tony and Patrice feel cared about and loved by friends and family. The Pastoral visits are wonderful, and their church family has tended to them and their children in many ways. Their Homebuilder classmates at Sierra Madre Congregational Church are setting up a video cam, so that Tony can speak to the class "face to face" this Sunday.
"Whatever is good, whatever is lovely.....think on these"...Ecc:
Tuesday, July 27, 2010
Medical Rehab
Tony has been at Huntington Hospital for 5 1/2 days. Physical and Occupational therapy sessions are going slowly, but surely. Today, Tony walked 12 feet with the aid of a walker, and did quite a bit of therapy on his left arm. The lab results from the latest spinal tap should be back by the end of this week, and will hopefully tell us, ONCE and FOR ALL, if there IS or IS NOT
cancer in Tony's spinal column, and if so, is it the cause of his weakened extremities.
Patrice arrives at the hospital every morning and friend, Cheryl Franco, is usually already in the hospital room, attending to Tony. The three of them are joined throughout the day with visitors who help pass the hours in between therapy sessions. Everyone helps with the lunch and dinner trays, blankets, changing of pillows, etc. Tony and Patrice are so grateful for the love and support from family and friends. As Patrice often says...."the words thank you, are just not enough.....there are no words."
And so it goes, day to day.
"Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us." Hebrews: 12:1
cancer in Tony's spinal column, and if so, is it the cause of his weakened extremities.
Patrice arrives at the hospital every morning and friend, Cheryl Franco, is usually already in the hospital room, attending to Tony. The three of them are joined throughout the day with visitors who help pass the hours in between therapy sessions. Everyone helps with the lunch and dinner trays, blankets, changing of pillows, etc. Tony and Patrice are so grateful for the love and support from family and friends. As Patrice often says...."the words thank you, are just not enough.....there are no words."
And so it goes, day to day.
"Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us." Hebrews: 12:1
Saturday, July 24, 2010
Rehabilitation at Huntington Memorial
Tony arrived at Huntington Hospital late Thursday afternoon. The ambulance ride was rough on him, due to heavy traffic and the driver having to apply the brakes often. Tony is settled in now, and had 3 hours of physical and occupational therapy on Friday.....and 1 hour today....Saturday. Tony was able to take 3 steps with the aid of a walker. He is consuming more food now that the effects of the chemotherapy have subsided. Protein and calorie in-take are very important now, as he needs the energy to be able to perform physical therapy. Tony weighs 180 lbs today. The dietician told Tony this morning, that the perfect weight for him, is 200 lbs. Patrice has now gone to the health food store to buy protein drinks with more calories and protein than the ones served in the hospital. Tony has got to put on some weight, as Patrice is horrified at the fact that she now outweighs her husband!
Tony requests a back rub about every 2 hours. Thanks to friends Mark and Sharon Sweeney....Tony has not run out of Bath and Body Works products since he checked into the hospital in early June. The Eucalyptus and Spearmint have become favorites. Tony's hair on his head and face have begun to fall out.
Patrice is now sleeping at home and able to get a good night's sleep, returning to the hospital each morning to spend the day with Tony. Vanessa and Michael are able to stop in daily, now that Tony is closer to home. The hospital room is beginning to reflect the love and concern from family and friends, as posters, balloons, etc. are allowed to come into the room. Tony was not able to enjoy any of these things at UCLA, as he was in ICU and the Chemo ward. Tony will return to UCLA in 12 days to begin his second round of chemotherapy.
Please continue to ask the Lord for His peace, that passes all understanding, to cover Tony at this time.
Tony requests a back rub about every 2 hours. Thanks to friends Mark and Sharon Sweeney....Tony has not run out of Bath and Body Works products since he checked into the hospital in early June. The Eucalyptus and Spearmint have become favorites. Tony's hair on his head and face have begun to fall out.
Patrice is now sleeping at home and able to get a good night's sleep, returning to the hospital each morning to spend the day with Tony. Vanessa and Michael are able to stop in daily, now that Tony is closer to home. The hospital room is beginning to reflect the love and concern from family and friends, as posters, balloons, etc. are allowed to come into the room. Tony was not able to enjoy any of these things at UCLA, as he was in ICU and the Chemo ward. Tony will return to UCLA in 12 days to begin his second round of chemotherapy.
Please continue to ask the Lord for His peace, that passes all understanding, to cover Tony at this time.
Tuesday, July 20, 2010
Changes..
Looks like Tony will have a new address very soon. Huntington Memorial Hospital in Pasadena....Rehab Floor. Tony will be transported by ambulance either Wednesday, Thursday or Friday of this week. He will stay there for 2 weeks, as his 2nd round of chemotherapy has been pushed back for 2 weeks. Tony will be transported back to UCLA for his 2nd round of chemo on or about August 4th. Tony's spirits are lifted, due to this news. Patrice will not be able to stay overnight with Tony at Huntington, and will go home each night, returning to UCLA with Tony.
The specific MRI's of Tony's C and L spine did not show any invasion of Lymphoma on the nerves, however another Spinal Tap was performed this morning, and the fluid has gone to the lab for testing of cancer inside the spine. At this point the doctors cannot confirm whether or not there is cancer in Tony's spine, and may not be able to... even AFTER the lab results are in. Either way, the Physical Therapy protocol is the same. Additionally, Tony's internal spinal column and brain are being treated with chemotherapy, and will continue to be throughout the next 3 months as a precaution.
The surgical incision across Tony's abdomen has finally healed to the point that every-other staple was able to be extracted yesterday. The staples at the very highest point of the incision were not able to be removed, as fluid continues to leak from that area. The doctors are keeping a close watch on this area of Tony's wound.
Our request for prayer(s) now, are specific. That Tony would begin to eat more, build strength in order to withstand the rigors of physical therapy over the next 2 weeks, that eventually he will be able to walk well enough to come home in between chemotherapy rounds and additionally, that he will be healed from cancer.
"Now to Him who is able to do immeasurably more than all we ask or imagine, according to His powers that is at work within us, to Him be the glory in the church and in Christ Jesus, throughout all generations, forever and forever!....Amen
Ep: 3:20-21
The specific MRI's of Tony's C and L spine did not show any invasion of Lymphoma on the nerves, however another Spinal Tap was performed this morning, and the fluid has gone to the lab for testing of cancer inside the spine. At this point the doctors cannot confirm whether or not there is cancer in Tony's spine, and may not be able to... even AFTER the lab results are in. Either way, the Physical Therapy protocol is the same. Additionally, Tony's internal spinal column and brain are being treated with chemotherapy, and will continue to be throughout the next 3 months as a precaution.
The surgical incision across Tony's abdomen has finally healed to the point that every-other staple was able to be extracted yesterday. The staples at the very highest point of the incision were not able to be removed, as fluid continues to leak from that area. The doctors are keeping a close watch on this area of Tony's wound.
Our request for prayer(s) now, are specific. That Tony would begin to eat more, build strength in order to withstand the rigors of physical therapy over the next 2 weeks, that eventually he will be able to walk well enough to come home in between chemotherapy rounds and additionally, that he will be healed from cancer.
"Now to Him who is able to do immeasurably more than all we ask or imagine, according to His powers that is at work within us, to Him be the glory in the church and in Christ Jesus, throughout all generations, forever and forever!....Amen
Ep: 3:20-21
Saturday, July 17, 2010
Daily Life Now..
Each morning as I wait for Tony to stir in his hospital bed, I watch the new day's light, stream into our hospital room. If it is a clear day, I can see the ocean from the large picture window just above the leather couch I sleep on. Here on the 6th floor of UCLA Medical Center, there is a beautiful view, day or night.
The nurse and care giver come through the door sometime between 7:45 and 8:15 and they write their names on the white board just to the left of the entrance. Tony and I eagerly await the posting of "his numbers"...ie., white blood cell count, platlets, and hemaglobin count. These change each day, and give us some indication of how well the chemotherapy is working. So far, so good. If we are blessed with either Young or Robert as our care-giver for the day, we know Tony will be well attended to. Nurse
Kim and Michelle are favorites too.
Soon after breakfast, teams of doctors visit and give us reports on Tony's test results, progress and any new drugs they have ordered. Each day brings the Onocologists, Cardiologists and Neuro Team. Physical Therapists and Occupational Therapists usually work with Tony in the afternoon. The Lift Team also comes on a daily basis to pick up and move Tony into different
positions. So far we have been blessed with NO bed sores.
Just today Tony told me that he has taken one step out of a hundred......with 99 more to go before he will be in remission. Neither one of us has truly accepted what has happened, and are still in shock regarding this cancer diagnosis. If I allow myself to really "feel" it, I become overwhelmed with fear and sadness......so I just keep moving.
I try and remind myself everyday what my husband has always said to me during difficult times....."just deal with it, Patrice, it's temporary and will pass......adapt". I'm trying.
The nurse and care giver come through the door sometime between 7:45 and 8:15 and they write their names on the white board just to the left of the entrance. Tony and I eagerly await the posting of "his numbers"...ie., white blood cell count, platlets, and hemaglobin count. These change each day, and give us some indication of how well the chemotherapy is working. So far, so good. If we are blessed with either Young or Robert as our care-giver for the day, we know Tony will be well attended to. Nurse
Kim and Michelle are favorites too.
Soon after breakfast, teams of doctors visit and give us reports on Tony's test results, progress and any new drugs they have ordered. Each day brings the Onocologists, Cardiologists and Neuro Team. Physical Therapists and Occupational Therapists usually work with Tony in the afternoon. The Lift Team also comes on a daily basis to pick up and move Tony into different
positions. So far we have been blessed with NO bed sores.
Just today Tony told me that he has taken one step out of a hundred......with 99 more to go before he will be in remission. Neither one of us has truly accepted what has happened, and are still in shock regarding this cancer diagnosis. If I allow myself to really "feel" it, I become overwhelmed with fear and sadness......so I just keep moving.
I try and remind myself everyday what my husband has always said to me during difficult times....."just deal with it, Patrice, it's temporary and will pass......adapt". I'm trying.
Friday, July 16, 2010
Still Waiting....
Tony has finished his first round of chemotherapy, without the Doxirubicin agent. Tony's heart ejection factor is still pumping at 44%, and the doctors would like it to recover to 50% ejection rate, before re-introducing the Doxirubicin. The Cardiologists believe with 2 drugs......Coreg and an Ace Inhibitor, his heart muscle can recover enough strength over the next two weeks so that the Doxirubicin can be part of the second round of chemotherapy. Tony's second round of chemotherapy will begin, July 29th.
The Neurology team has completed the EMG testing on Tony. They have ordered an MRI of his C and L spine, and hope the findings of this MRI will support the findings from the EMG test. Tony had the MRI done earlier today, and we hope to learn something tomorrow that would explain the weakened state of his arm and leg.
Tony will be transported back and forth from UCLA Medical Center, to an inpatient rehabilitation center (hopefully Huntington Memorial Hospital, Pasadena), to receive alternating treatments of chemotherapy and physical therapy. Tony will not be going home until he can walk with a walker. Hopefully his inpatient physical therapy sessions will begin next week, so that he can get a good 5 to 7 days of physical therapy work done, before he is transported back to UCLA for his second round of chemotherapy.
Please pray for patience and sustainability for both Tony and Patrice
"Find rest, O my soul, in God alone; my hope comes from Him."........psalm 62:5
The Neurology team has completed the EMG testing on Tony. They have ordered an MRI of his C and L spine, and hope the findings of this MRI will support the findings from the EMG test. Tony had the MRI done earlier today, and we hope to learn something tomorrow that would explain the weakened state of his arm and leg.
Tony will be transported back and forth from UCLA Medical Center, to an inpatient rehabilitation center (hopefully Huntington Memorial Hospital, Pasadena), to receive alternating treatments of chemotherapy and physical therapy. Tony will not be going home until he can walk with a walker. Hopefully his inpatient physical therapy sessions will begin next week, so that he can get a good 5 to 7 days of physical therapy work done, before he is transported back to UCLA for his second round of chemotherapy.
Please pray for patience and sustainability for both Tony and Patrice
"Find rest, O my soul, in God alone; my hope comes from Him."........psalm 62:5
Tuesday, July 13, 2010
Waiting
This Tuesday morning we find ourselves waiting. Waiting for the Nuclear Heart Scan results to be reported to us by the cardiology team, and for the MRI results of the C and T spine to be explained by the Neuro Team. The results of these two tests will give us vital information as to how we move forward with Tony's treatment. The Heart Scan was conducted so that the ejection rate could be measured, and if strong enough, then the chemo agent, Doxirubicin can and will be re-introducted this afternoon.
The Neurologists are trying to come to a conclusion regarding Tony's weakened extremities (left arm and right leg). Some preliminary tests were conducted, and the MRI was ordered. An EMG test will be performed later this afternoon. An EMG is done with very small needles, much like those used in acupuncture, to determine nerve and muscle response. We hope and pray there is no permanent nerve damage, and that Tony can fully recover the use of his extremities, with physical and occupational therapy.
Please continue to pray for full recover, and for Tony's emotional and mental health. Everyday seems to bring more tests and more discomfort for Tony, as he has not been out of bed for over a month and is struggling with the reality that he cannot walk at this time.
"On my bed I remember you; I think of you through the watches of the night. Because you are my help, I sing in the shadow of your wings. My soul clings to you; your right hand upholds me. Psalm 63: 6-8
The Neurologists are trying to come to a conclusion regarding Tony's weakened extremities (left arm and right leg). Some preliminary tests were conducted, and the MRI was ordered. An EMG test will be performed later this afternoon. An EMG is done with very small needles, much like those used in acupuncture, to determine nerve and muscle response. We hope and pray there is no permanent nerve damage, and that Tony can fully recover the use of his extremities, with physical and occupational therapy.
Please continue to pray for full recover, and for Tony's emotional and mental health. Everyday seems to bring more tests and more discomfort for Tony, as he has not been out of bed for over a month and is struggling with the reality that he cannot walk at this time.
"On my bed I remember you; I think of you through the watches of the night. Because you are my help, I sing in the shadow of your wings. My soul clings to you; your right hand upholds me. Psalm 63: 6-8
Saturday, July 10, 2010
Fighting on Two Fronts
One of the chemotherapy agents had to be suspended on Friday morning due to the "heart flutter" that Tony has been experiencing. Today the cardiologist is happy to report that with the drug Verapamil, she was able to get Tony's heart back to normal rhythm and his injection rate strong enough so that the Doxirubicin, can be re-introduced, on Monday. Tony and the team of doctors at UCLA want to fight the Lymphoma as aggressively as possible, and knowing that the Doxirubicin will once again be part of the chemo "cocktail", has given us all a sigh of relief.
Another battle, at present, is Tony's weakened extremities. Tony's right leg and left arm have suffered "surgical myopathy", and Tony cannot walk or lift his arm. Physical Therapy has been introduced on a small scale, but intense physical and occupational therapy will be required, post treatment, in order for Tony to have use of his two extremities. Please pray specifically now for his heart to remain stable, and for full restoration of his arm and leg.
"I can do all things through Christ, who strengthens me"........Philippians 4:13
Another battle, at present, is Tony's weakened extremities. Tony's right leg and left arm have suffered "surgical myopathy", and Tony cannot walk or lift his arm. Physical Therapy has been introduced on a small scale, but intense physical and occupational therapy will be required, post treatment, in order for Tony to have use of his two extremities. Please pray specifically now for his heart to remain stable, and for full restoration of his arm and leg.
"I can do all things through Christ, who strengthens me"........Philippians 4:13
Friday, July 9, 2010
Eye of the Storm
Tony's first day of chemotherapy is complete; he faired well except for one minor set back. Prior to surgery, Tony was given an excellent cardiology report, he passed all nuclear medicine tests with an A+. But due to tumor lysis, and new medications his heart has been under a lot of strain. He has developed a "flutter", one that is made worse by one of the chemotherapy agents. Therefore at 5pm yesterday the oncologist discontinued this particular drug. Now he is receiving just two of the three and will finish on day 5 with a different drug. As we walk on this path of unknowns, we are taking on an attitude of being flexible. Flexibilty is what will carry us through this time. Each day has brought twists and turns, and as we are believing God day by day, we know He is in the center of this storm, carrying us and holding us tightly. We praise Him for loving us so much!
23rd Psalm (Living Bible):
"Because the Lord is my Shepherd, I have everything I need! He lets me rest in the meadow grass and leads me beside the quiet streams. He restores my failing health. He helps me do what honors him the most Even when walking thrugh the dark valley of death I will not be afraid, for you are close beside me, guarding, guiding all the way. You provide delicious food for me in the presence of my enemies. You have welcomed me as your guest; blessings overflow! Your goodness and unfailing kindness shall be with me all of my life, and afterwards I will live with you forever in your home."
23rd Psalm (Living Bible):
"Because the Lord is my Shepherd, I have everything I need! He lets me rest in the meadow grass and leads me beside the quiet streams. He restores my failing health. He helps me do what honors him the most Even when walking thrugh the dark valley of death I will not be afraid, for you are close beside me, guarding, guiding all the way. You provide delicious food for me in the presence of my enemies. You have welcomed me as your guest; blessings overflow! Your goodness and unfailing kindness shall be with me all of my life, and afterwards I will live with you forever in your home."
Thursday, July 8, 2010
A Room with a View
Tony has graduated from thte ICU, and has been moved to the Heme/Onc floor! What a glorious day, not only for Tony, but for Patrice as well. Now Patrice can stay by his side and sleep in the same room, rather than moving from waiting room to waiting room. The oncology team is amazing, truly are new family. They have set his chemo "cocktail" in motion and now we enter into the world of cancer treatment. This cocktail contains three different chemo agents which will be infused via IV 24 hours straight x 4 days. Then on day 5 he will receive a separate chemo drug, one which we tried while Tony was still intubated in the ICU, and he responded well to. We covet your prayers as we enter into this foreign land of chemotherapy. We are praying that his kidneys remain strong and capable of filtering the toxins; that his nausea be minimal to none; that the chemo begins destroying the cancer cells quickly and that Tony's spirits remain high. Tony is ready to fight this lymphoma and win the battle. Once again, thank you for your prayers, they are so powerful.
Pray for one another, so that you may be healed. The intense prayer of the righteous is very powerful. James 5:16
Pray for one another, so that you may be healed. The intense prayer of the righteous is very powerful. James 5:16
Monday, July 5, 2010
Tony is Back!
Oh how the Lord has blessed us over the past 24 hours, as we have watched our Tony return to us. We have witnessed a true miracle, and wow does Tony ever have a story to tell! Tony has had us crying, laughing, and most importantly, praising our Lord for the gift of answered prayer. Tony has shared in great detail, the battle he has been going through since he arrived at the hospital. He states, " I was at the end of the earth and thought I was going to die." With sword in hand, Tony did battle. He is clear and focused and ready to stand up and shout from the mountain tops that our God is an awesome God. Tony also "passed" his swallow test today with flying colors. He is now off TPN ( total parenteral nutrition) and is able to eat on his own. Now our prayers are centered on completing his steroids to move onto his first true round of chemotheraphy. A new finding of lymphoma cells on his spine and some against his skull (nothing in his brain or CSF) are causing some problems with his left arm and right leg. We are claiming new found strength for him, to get up and move and get out of the ICU. Please join us in those efforts. We thank you for your continued love, support, and prayers. You truly are blessing all of us more than you will ever know.
Finally, be strong in the Lord and in the strength of his might. Put on the whole armor of God, that you may be able to stand against the wiles of the devil. Ephesians 6: 10-11
Affliction produces endurance, endurance produces proven character, and proven character produces hope. Romans 5: 3-4
Finally, be strong in the Lord and in the strength of his might. Put on the whole armor of God, that you may be able to stand against the wiles of the devil. Ephesians 6: 10-11
Affliction produces endurance, endurance produces proven character, and proven character produces hope. Romans 5: 3-4
Sunday, July 4, 2010
Answered Prayer!
Praise the Lord! On this our Nation's birthday, we have received the most wonderful news, all answers to prayer! All is well... no internal bleeding, no need for further surgery, no stroke, and most importantly, no cancer in the brain or spine. Alleluia! We are weeping tears of joy as we rejoice in His mercy and grace. What an awesome God we serve. Thank you for your continued prayer and support. We wish you the happiest of days, as you celebrate the 4th of July with family and friends. And know... all is well with our souls.
Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus. 1 Thessalonians 5: 16-18
Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus. 1 Thessalonians 5: 16-18
Saturday, July 3, 2010
Never a Dull Moment
Tony has expierenced some increased bleeding to his incision site today. Since surgery he has continued to ooze at the site with serous fluid, but today we have witnessed increased bleeding thru his dressing onto his gown and even his sheet. His clotting factors and blood levels have dropped enough to warrant repeated blood transfusions of packed red blood cells, platelets, and plasma. Today alone he has received blood three times. Therefore, Tony went for a CT scan of his abdomen to determine if surgery is necessary to control this internal bleeding. They have a surgeon on standby right now as they are reading his scans. Tony is much more lucid and even participating in converstations with the doctor about his care. He is ready to fight this battle. We ask for prayer as we await news from the doctors regarding surgery.
Count it all joy, my brethren, when you meet various trials, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing. James 1:2-4
Count it all joy, my brethren, when you meet various trials, for you know that the testing of your faith produces steadfastness. And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing. James 1:2-4
MOVING FORWARD
Tony is still in ICU, and in stable condition. All of his "numbers" (blood pressure, temp, heart rate, etc.,) are normal. We now await the Oncology doctors to tell us what the treatment and protocol will be, in order to win the battle against Lymphoma. Tony was taken to radiology late last night and had an MRI taken of his brain and C-spine. It was difficult for him to remain in the closed MRI machine, so they were not able to scan his chest. We await the results of the brain and c-spine" to determine if an MRI of the chest will be necessary. Tony has been started on steriods thru IV. These are necessary for the next 5 days, along with high calorie in-take, before starting his first potent round of chemotherapy. Tony will remain at UCLA for at least another 2 weeks. As Tony has regained some strength and cognition, he understands what has happened, and what his condition is. Just this morning he told Patrice..."if I come out of this, I want to put on seminars about the power of faith." Watching Tony go thru all he has gone thru these past 12 days, and knowing, that he knows what is ahead, makes those words all the more awesome. We hope these seminars become a reality. May it all Glorify the Lord!
"And we know that in all things God works for the good of those who love him, who have been called according to His purposes"
Romans 8:28
"And we know that in all things God works for the good of those who love him, who have been called according to His purposes"
Romans 8:28
Wednesday, June 30, 2010
He's Awake!!
Tony woke up today and spoke his first words since Wednesday. This morning started with a simple form of communication- head nods and hand squeezes. However, with the onset of the afternoon his nurse determined that he was finally ready to be extubated. As the tubes slid out, our Tony came back to us! The moment he could talk, Tony sputtered to his nurse in an abraded voice "Thank you for everything you've done for me, you've been very nice to me." That was that: all of Tony's women (those that have set up base camp for the past week) melted into humble tears. This display of chivalry that defines Tony's existence is the harbinger we have all been fastidiously anticipating. Since then, he's become even more responsive- in typical Frisina fashion, he told Patrice to let him be, he asked to hear details about our lives since he's been asleep, and he continued to request a more comfortable bed- if only we were lodging in a Ritz Carlton!! His demands keep coming- water, fan, sleep....and with each sassy request or impudent lift of the brow, our faith in the Lord becomes even more inexorable. How wonderful to serve a God that draws us near in our times of need and offers us arrant reassurance of His proximity!
"Praise the LORD , O my soul, and forget not all his benefits-who forgives all your sins
and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle's."
Psalm 103: 2-5
"Praise the LORD , O my soul, and forget not all his benefits-who forgives all your sins
and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle's."
Psalm 103: 2-5
Tuesday, June 29, 2010
Pray for Consistent Stability
Tony finished his first round of chemo today and should be starting his second round within the next 8 to 10 days contingent upon his health. Tony will remain in the hospital until he is stable enough to resume with chemo. While Tony is still in critical condition in the ICU, the doctors have faith in his ability to breathe without assistance by the end of this week. His doctors have weened him off his intubation such that Tony is breathing for himself while the machines are maintaing a partial positive pressure that inflates his lungs. Hopefully by Thursday, he should be completely extubated. The doctors discovered an infection in his throat caused by the introduction of tubes. However, this infection has localized in his throat without spreading throughout the rest of his body-praise the Lord! This morning, Tony 's temperature was below normal and it took all but half a day for it to normalize. Please pray that Tony is able to sustain a constant and healthy temperature! As of today, Tony is not receiving any further sedation as long as he can maintain stable levels. Praise the Lord that the doctors feel confident enough in Tony's body to allow his systems to regain partial independent function!! We witnessed Tony open his eyes for the first time since Thursday, a much needed miracle to abate our concerns. He is currently resting while the deep hum of Frank Sinatra overwhelms the incesscant beeps emanating from the dialysis and IV machines.
"Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you, and none will miscarry or be barren in your land. I will give you a full life span."
Exodus 23: 25-26
"Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you, and none will miscarry or be barren in your land. I will give you a full life span."
Exodus 23: 25-26
Something to Renew your HOPE!
We hold steadfastly to the faith that God can perform miracles! Continue to believe throughout this entire process that everything is according to His plan.....The following are words of encouragement to restore your hope in this immense battle that we face, remembering that anything is possible through Christ Jesus!
It Couldn't Be Done by Edgar Guest
Somebody said that it couldn't be done,
But he with a chuckle replied
That "maybe it couldn't," but he would be one
Who wouldn't say so till he'd tried.
So he buckled right in with the trace of a grin
On his face. If he worried he hid it.
He started to sing as he tackled the thing
That couldn't be done, and he did it.
Somebody scoffed: "Oh, you'll never do that;
At least no one ever has done it";
But he took off his coat and he took off his hat,
And the first thing we knew he'd begun it.
With a lift of his chin and a bit of a grin,
Without any doubting or quiddit,
He started to sing as he tackled the thing
That couldn't be done, and he did it.
There are thousands to tell you it cannot be done,
There are thousands to prophesy failure;
There are thousands to point out to you, one by one,
The dangers that wait to assail you.
But just buckle in with a bit of a grin,
Just take off your coat and go to it;
Just start to sing as you tackle the thing
That "cannot be done," and you'll do it.
It Couldn't Be Done by Edgar Guest
Somebody said that it couldn't be done,
But he with a chuckle replied
That "maybe it couldn't," but he would be one
Who wouldn't say so till he'd tried.
So he buckled right in with the trace of a grin
On his face. If he worried he hid it.
He started to sing as he tackled the thing
That couldn't be done, and he did it.
Somebody scoffed: "Oh, you'll never do that;
At least no one ever has done it";
But he took off his coat and he took off his hat,
And the first thing we knew he'd begun it.
With a lift of his chin and a bit of a grin,
Without any doubting or quiddit,
He started to sing as he tackled the thing
That couldn't be done, and he did it.
There are thousands to tell you it cannot be done,
There are thousands to prophesy failure;
There are thousands to point out to you, one by one,
The dangers that wait to assail you.
But just buckle in with a bit of a grin,
Just take off your coat and go to it;
Just start to sing as you tackle the thing
That "cannot be done," and you'll do it.
Pray for Strength
Yesterday the doctors noticed that Tony has an infection in his respiratory tract- yet another ailment to add to his exponentially growing list. Tony's heart is still slightly unstable due to the extreme stress his body is under. The doctors administered yet another low dose of chemo and plan to administer one more today before they start him on another series. But we also received a glimmer of hope as the doctors announced that Tony's CT Scan exposed both his brain and chest were tumor free!!! Praise the Lord! Now, we wait and pray for Tony's condition to stabilize enough to allow him to leave ICU.
Pray for strength- strength of body, strength of heart, and strength of spirit as Tony rests in ICU. We know that God is prevalent in all things, especially admist the chaos and troubles in our lives. Continue to glorify His name as we fight this battle together!
"ascribe to the LORD the glory due his name. Bring an offering and come before him; worship the LORD in the splendor of his holiness."
1 Chronicles 16:29
Pray for strength- strength of body, strength of heart, and strength of spirit as Tony rests in ICU. We know that God is prevalent in all things, especially admist the chaos and troubles in our lives. Continue to glorify His name as we fight this battle together!
"ascribe to the LORD the glory due his name. Bring an offering and come before him; worship the LORD in the splendor of his holiness."
1 Chronicles 16:29
Sunday, June 27, 2010
Cautiously Optimistic
"Cautiously Optimistic"- A phrase that we have heard repeatedly throughout the last 24 hours regarding Tony's cancer. The cautious half of this statement factors in Tony's current condition in the ICU, while the optimism expresses their hope in a battle for his full recovery. Just this morning Tony was moved from the surgical ICU to the medical ICU floor. It was rather comical to watch as all 20 of Tony's visiting family members transported our makeshift house from the 8th to the 4th floor waiting room. We found ourselves laughing as we ran from floor to floor stealing extra chairs and stools to accommodate our growing troops.
Tony is midway through his first round of chemo treatment- which should be completed sometime tomorrow. We now ask that you pray over Tony's heart to remain at a stable heart rate and blood pressure. His numbers have sporadically fluctuated as the doctors have weened Tony away from sedation. The anxiety of becoming more aware has caused Tony's numbers to follow a sinusoidal curve- spiking and falling without provocation. Please pray a hedge of protection over Tony's heart: that his blood pressure and heart rate stabilizes. As I am writing, his numbers are continuing to stabilize and Tony has produced small amounts of urine- a positive output that proves Tony's kidneys are regaining function.
Be of good courage, and he shall strengthen your heart, all ye that hope in the Lord.
Psalm 31:24
Tony is midway through his first round of chemo treatment- which should be completed sometime tomorrow. We now ask that you pray over Tony's heart to remain at a stable heart rate and blood pressure. His numbers have sporadically fluctuated as the doctors have weened Tony away from sedation. The anxiety of becoming more aware has caused Tony's numbers to follow a sinusoidal curve- spiking and falling without provocation. Please pray a hedge of protection over Tony's heart: that his blood pressure and heart rate stabilizes. As I am writing, his numbers are continuing to stabilize and Tony has produced small amounts of urine- a positive output that proves Tony's kidneys are regaining function.
Be of good courage, and he shall strengthen your heart, all ye that hope in the Lord.
Psalm 31:24
Saturday, June 26, 2010
Power of Prayer (and UCLA)
As of this morning, Tony's numbers are stabilized but he is still in critical condition. His renal system is unable to function without a dialysis machine and he he is still connected to a ventilater. Since his cancer is extremely aggressive, the oncologist team decided to start him on a low dose treatment of chemotherapy that will function in retarding the spread of his tumors. Once he is stronger, they will use more tenatious chemo agents to attack his tumors. Tony is scheduled for a Pet Scan later this afternoon as well as an MRI of his brain.
Praise the Lord that Tony is recieving care at UCLA!! Tony's illness proves to be an enigma. Not all the pieces fit in perfect progression of a typical lymphoma patient. However, due to the UCLA medical staff and Kathy Larson, Tony's extensive team of doctors were able to extemporaneously treat Tony in such a way that saved his life just minutes away from crashing. God hears our prayers!!! Continue to pray and hope in the Lord.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal."
2 Corinthians 4:16-18
Praise the Lord that Tony is recieving care at UCLA!! Tony's illness proves to be an enigma. Not all the pieces fit in perfect progression of a typical lymphoma patient. However, due to the UCLA medical staff and Kathy Larson, Tony's extensive team of doctors were able to extemporaneously treat Tony in such a way that saved his life just minutes away from crashing. God hears our prayers!!! Continue to pray and hope in the Lord.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal."
2 Corinthians 4:16-18
Friday, June 25, 2010
Diagnosis
We can finally say with confidence that Tony has been diagnosed with stage 4E non-Hodgkin's Lymphoma. Lymphoma is a form of cancer that attacks the lymphatic cells (aka the white blood cells functioning in the immune system). Incidentally, Tony's 30 year battle with Hepatitis C served as a red herring throughout the entire diagnosis process-suggesting that he was fighting against a form of Liver Cancer. Now the oncologists are saying that the tumors present within the omentum cavity and the tumor on Tony's liver are both due to lymphoma and not associated with any previous speculations. The next step is to determine the proper form of treatment. Since Tony is still in the ICU surviving off of the ventilater and dialysis machines, the oncologist team must develop a specialized attack that would be less aggressive on his renal system then full blown chemotherapy. Tony's immune system is compromised by much more then just lymphoma, making this cancer increasingly more difficult to defeat. However, the blessing of this diagnosis offers hope that lymphoma is curable, but in Tony's case this requires a force much more powerful then medicine. Treatment is much more difficult for Tony then in a healthier patient. Please continue to pray that Tony's renal conditions will improve. We continue to cling to the hope manifested through prayer as prayer remains to be the only force that offers Tony a sense of peace.
Romans 12:12
Be joyful in hope, patient in affliction, faithful in prayer.
Romans 12:12
Be joyful in hope, patient in affliction, faithful in prayer.
prayer request
We believe that Tony is currently fighting off an infection as he is febrile. His numbers have also started to slip. Please continue your prayers, especially against his fever.
"Behold, I will bring him health and healing; I will heal them and reveal to them the abundance of peace and truth."
Jeremiah 33:6
"Behold, I will bring him health and healing; I will heal them and reveal to them the abundance of peace and truth."
Jeremiah 33:6
update
After several hours on dialysis, Tony's counts have started to stabilize. While his immediate crisis is over, however, we are still not out of the woods. It is going to be a hard battle to fight for our Tony. Please keep the prayers coming and continue to check the blog for more updates.
please pray
Over the night Tony's condition took a turn for the worse. They have now moved him into an ICU and he is hooked up to a ventilator and dialysis machine. The Tony that we witnessed yesterday is much hazier today. Please stop and pray for Tony whenever you think about him throughout your day. We know that God has a reason for everything. And we especially know that it is in times like this that HE is carrying us in His arms for without Him we would not have the strength to endure.
Thursday, June 24, 2010
miracle in the morning
Our Tony is coming back! Though we tried to sleep through the night, Tony kept us up and entertained, a lucid side that we have missed. In the middle of the night, Tony yelled for Patrice to assist with his fan. After Patrice failed to understand his mumbled request, Tony sputtered in his sarcastic manner "Patice, you're useless!!" A response that left the room in laughter and tears of joy knowing that this solicited a hope for further cognition. Moments later Tony looked to Patrice and very clearly uttered the words "I love you honey." Early this morning, the nurses took Tony off of his oxygen and plan to soon remove his catheter. In a matter of hours, Tony will be moved to a chair in order to start regaining strength. All signs that our Tony is comin g back!!
We continue to wait and pray for the biopsy results. Praise the Lord for even the smallest of miracles that we continually witness in this cramped hospital room.
Even just watching Tony spread a slow smile across his face brings us all to tears of joy.
We continue to wait and pray for the biopsy results. Praise the Lord for even the smallest of miracles that we continually witness in this cramped hospital room.
Even just watching Tony spread a slow smile across his face brings us all to tears of joy.
Wednesday, June 23, 2010
wednesday night
What a long day for our Tony!!! The preliminary results came back from the biopsies. Praise the Lord!! The results are indicative of possible lymphoma. This is the hopeful news we have all been waiting for! The oncologist ran several more tests- including a very painful bone marrow aspiration- in attempt to definitively offer a diagnosis. We are currently waiting for the results from these tests in order to determine the proper form of treatment. We are so very proud of this brave man laying in front of us!! He carries the strength we all dig deep to find. Even through his haziness,Tony is carrying himself with dignity as he perseveres through the ups and downs of his illness.
No more then an hour ago, Tony broke through his haze asking for us to pray over him explaining to us that God will take his pain from him. What an honor and blessing to see his relationship with God flourish even in the midst of sorrow.
We will update you as soon as we know more on his condition, please keep the prayers coming!
No more then an hour ago, Tony broke through his haze asking for us to pray over him explaining to us that God will take his pain from him. What an honor and blessing to see his relationship with God flourish even in the midst of sorrow.
We will update you as soon as we know more on his condition, please keep the prayers coming!
Wednesday June 23, 2010
Day after surgery:
Yesterday found us all at a loss for words. No one was prepared for the news the doctor delivered post surgery: that Tony's tumor had metastasized throughout his entire Omentum cavity and lymph nodes. Meaning, in laymen's terms, that his previously existing tumor is unresectable. The laproscopy looked promising, so the surgeon opened him and discovered the new tumors. He biopsied three different sites, which all came back malignant, therefore three frozen sections were sent off for determination of type. The tumors are undifferentiated and have appeared quickly. So now, we wait.... we wait for his biopsy to return for a definitive answer to this bizarre occurrence, we wait for Tony's strength to return so that we can get him home, and while we wait we pray. We pray that this pain that has seized our beloved husband, father, and dear friend subsides, we pray that he finds the energy to fight, and we pray that the results the doctors deliver in a matter of days are well received.
But one thing we know steadfastly, that our God is all powerful and capable of miracles. Everything is according to His good and perfect plan:
Have you not known? Have you not heard?
The Lord is the everlasting God,
the Creator of the ends of the earth.
He does not faint or grow weary;
his understanding is unsearchable.
He gives power to the faint,
and to him who has no might he increases strength.
Even youths shall faint and be weary,
and young men shall fall exhausted;
but they who wait for the Lord shall renew their strength;
they shall mount up with wings like eagles;
they shall run and not be weary;
they shall walk and not faint.
—Isaiah 40:28-31
Yesterday found us all at a loss for words. No one was prepared for the news the doctor delivered post surgery: that Tony's tumor had metastasized throughout his entire Omentum cavity and lymph nodes. Meaning, in laymen's terms, that his previously existing tumor is unresectable. The laproscopy looked promising, so the surgeon opened him and discovered the new tumors. He biopsied three different sites, which all came back malignant, therefore three frozen sections were sent off for determination of type. The tumors are undifferentiated and have appeared quickly. So now, we wait.... we wait for his biopsy to return for a definitive answer to this bizarre occurrence, we wait for Tony's strength to return so that we can get him home, and while we wait we pray. We pray that this pain that has seized our beloved husband, father, and dear friend subsides, we pray that he finds the energy to fight, and we pray that the results the doctors deliver in a matter of days are well received.
But one thing we know steadfastly, that our God is all powerful and capable of miracles. Everything is according to His good and perfect plan:
Have you not known? Have you not heard?
The Lord is the everlasting God,
the Creator of the ends of the earth.
He does not faint or grow weary;
his understanding is unsearchable.
He gives power to the faint,
and to him who has no might he increases strength.
Even youths shall faint and be weary,
and young men shall fall exhausted;
but they who wait for the Lord shall renew their strength;
they shall mount up with wings like eagles;
they shall run and not be weary;
they shall walk and not faint.
—Isaiah 40:28-31
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